Living life her way: Helen’s story
This World Cerebral Palsy Day, we’re celebrating Helen, a much-loved...
Customer Connor Rowntree is a bit of a legend among the Rocky Bay team, with his super smiley face and lovable nature charming everyone he meets.
Rocky Bay has been a familiar part of Connor’s life for many years. Before moving into his SIL (Supported Independent Living) home earlier this year, he regularly used Rocky Bay’s respite service. With his warmth and infectious personality, fellow customers became friends and support workers became lifelong allies.
For Connor’s mum, Sue, the decision to move her son into supported accommodation came after years of caring for him at home. Like many families, it was a difficult decision, but one made with Connor’s future in mind.
“We’re in our 60’s,” said Sue, “and I hadn’t been very well. Everything was just getting a bit much. I wanted to get Connor settled in case anything happened to us.”
The uncertainty that comes with moving house had already largely been removed for Connor. The area was familiar, the house was familiar (it’s next door to the respite service he attended), and many of the team members were familiar too.
It made all the difference.
Rocky Bay Lead Support Worker, Elle-Shae, has known Connor for around 10 years. She said that while naturally there was an adjustment period, Connor settled into his new home well, moving in with two other customers he already knew.
“It takes time to get used to everyone’s different routines,” said Elle-Shae. “But for Connor, once he learns what that is, he’s fine. Consistency is what he needed, and we make sure that every shift there is at least one person he knows.”
That familiarity was something Sue said was critical and helped make the transition smoother.
“Having faces he knew was important,” said Sue. “He’d been going to respite for a long, long time, so we were lucky that a few of the staff put their hands up to move over to the SIL accommodation with him. So he had I think four staff that he knew, and some night-staff too.”
Connor is clearly very fond of Elle-Shae, giving out the hugs and holding her hand to lead her to where he wants to go. There’s a mutual understanding between them, evident from how they interact. It doesn’t feel like customer and Rocky Bay employee, it feels like family. Elle-Shae talks affectionately about Connor and about the things that are important in his life.
“Anyone that knows Connor knows he likes to keep active,” Elle-Shae smiled. “He loves going to the E Shed on a Friday and having a dance. And he loves the bus and the train. He would go on one every single day if he could!”
“CAT bus,” Connor agreed.
“And Connor’s a social butterfly – he’ll talk to every man and his dog!” laughed Elle-Shae.
Quite literally.
“He loves dogs, don’t you?” Elle-Shae asked Connor, who nodded enthusiastically. He is looking forward to meeting Willow, the new puppy his mum will soon bring home.
And it turns out Connor has an impressive memory.
“He has the memory of an elephant,” said Elle-Shae. “He’ll say to you, ‘Oh, I saw you at the zoo.’ And it might have been that you took him to the zoo six years ago. And he’ll remember every team member – he’ll remember your roster and be like, ‘Oh, you’ve got a day off tomorrow’!”
Connor is also known for being helpful around the home – or at least taking credit for being helpful!
“He’ll help with anything,” said Elle-Shae. “You help cook, you help wash, you’ve got lots of jobs, haven’t you Con?”
And Connor’s favourite household responsibility?
“The bins,” said Elle-Shae. “He loves to take the bins out and watch the bin truck come.”
“What’s tomorrow?” she asked. “Bin truck,” Connor replied.
His helpful nature extends to visitors too. During our conversation, Connor offered to make coffee before quickly suggesting Roy, a support worker would do it.
“Connor’s very good at starting things for like a split second and then you do the rest!” laughed Elle-Shae.
He also enjoys reminding everyone how much he contributes around the house.
“Gary (Connor’s housemate) will be cooking and Connor will say, ‘I made these!'”
One of the biggest successes of the move has been the growing relationships between the housemates.
“The housemates are very well matched,” said Elle-Shae. “They’re all a bit cheeky. Gary’s got a pet snake, like a toy snake. Oh, I think it’s a dragon, actually! One of those 3D printed ones. And he shoves it down Connor’s shirt and they have play fights with the toys!”
When asked what he likes most about living in the house, Connor’s first answer is characteristically confident.
“Me.”
After a laugh, he offers another response.
“Cooking.”
“What do you like to cook?” asked Elle-Shae.
“Nothing!” he said, smiling.
It’s these moments that highlight what home is really about: being comfortable in your own environment and enjoying genuine friendships.
It’s a family away from family.
For Connor’s support team, his story shows the value of respite as more than just a short-term service. Using respite gave Connor the opportunity to become at home with independent living, spend time away from family, build trust with team members and develop relationships within the Rocky Bay community. Support worker Roy said it helped with the transition to SIL.
“It’s easier for the families as well. They get to know us, and we get to know them, so we can better support the customer from the very start.”
Sue believes that the existing relationship with Rocky Bay made all the difference. But the confidence in making the decision also came from a previous bad experience.
“Connor had tried living elsewhere, but it was terrible,” she said. “If you don’t mind your child just sat in front of the telly all day then that’s fine, but it’s not giving them a better life. There was no engagement and no one bothered to do anything with him. He was bored and unhappy.”
Now Connor has found where he belongs, and family involvement continues to be an important part of his life.
“We normally see him once or twice during the week,” said Sue, “and he’s very content to go back (to his Rocky Bay home). He’s like ‘I go home now’ because it’s his home, you know, he’s settled.”
With Connor moving out, Sue said that the quiet that came was at first a bit of shock!
“After 36 years of caring for my kids, and most recently Connor, it was quite weird having more time to myself. Now I don’t need to rush home from things all the time.”
And holidays look quite different now for Sue – because she’s actually getting one!
“We would go away on short breaks in the caravan with Connor – until he decided he didn’t like it anymore,” explained Sue. “But even when we were away it was usually cut short because Connor was ill or needed to be home. But recently we went on our first overseas holiday in years, we went to Bali. It was so nice to get some sun.”
Sue’s advice to other families who may be looking for a SIL home is to take it slowly, and consider respite as a way of transitioning.
“I think if you’re happy with them going to respite and they enjoy going then you’ve just got to gradually build it up to it,” said Sue. “Have a few little holidays at home without them, then I think you appreciate that bit of quality time to yourself. I think you know yourself if they’re happy or not there. You just get a sense. And if they are, just got to go for it!”
Most importantly for Sue and her husband, knowing Connor is happy in his SIL home has brought peace of mind.
Today, he’s doing what he enjoys most: getting out into the community, helping around the house, keeping an eye on the bin truck schedule and making sure everyone knows exactly who deserves the credit for the household chores.
Usually Connor!
To explore whether SIL could be right for your family, head to the Accommodation page which explains the different options available, or contact our team for further information.
“We always say we feel safe leaving him with Rocky Bay.”
- Sue Rowntree, Connor's mum